Archive for October, 2005
October 31, 2005:
9:30 pm – Surgery went well yesterday. Emma hasn’t eaten anything today, so she’ll probably lose a bit of her newly-gained weight and energy by tomorrow when she’s supposed to start eating again. We’ve had a second geneticist tell us he suspects a chromosome problem. The one mentioned is Chromosome 22. We really don’t know [...]
October 30, 2005:
11:00 pm – Surgery is tomorrow – not quite sure what time. We’ve heard from many friends coming to visit over the next few days. THANK YOU!! Miriam is very grateful for the time you’re taking to come to be with her. Still planning on coming home Wednesday/Thursday, so maybe she and Emma can hitch [...]
October 29, 2005:
10:30 am – Miriam tells me that Emma was wide awake last night until midnight, looking at her fish mobile. She would follow each fish around with her eyes and smile, then look at the next one and follow it around. And then as soon as it would stop she would cry until Miriam started [...]
October 28, 2005:
A note from Miriam regarding the pictures. If you look really closely at the second one you will see a smile hiding under that pacifier. The two pictures with me in them are actually pictures of me getting a lesson in inserting an NG feeding tube which I proceeded to do. The last one [...]
October 27, 2005:
12:30 pm – I’m headed back to Little Rock. Miriam just called and asked me to come back as soon as possible. Emma hasn’t been doing too well with food, so she’s on the feeding tube, but it sounds like there may be some other problems in other areas. Please pray for all of us [...]
October 26, 2005:
12:30 pm – Emma gained two ounces yesterday! The feeding tube is helping. Even better news is that they did the swallow study this morning, and thickened her formula. In her last feeding, she ate all 2 ounces on her own! The tube will stay in for a while until she proves she’s continuing to [...]
October 25, 2005:
9:30 pm – Well, Emma didn’t do so well yesterday. What with all the tests taking up her eating time (no food from 7 am – 3 pm) and eating poorly during the night, she lost another 10 oz(!) almost overnight. We feel that this is a blessing in disguise however – now the doctors [...]
October 24, 2005:
10:00 pm – I’m back from Little Rock now, and Miriam and Emma are still doing well in the hospital. Aftera a second echocardiogram (basically an ultrasound of the heart) this morning, the doctor met with us this afternoon. He said that heart seems to be doing fine. There is still some leakage around the [...]
October 23, 2005:
12:10 am – Miriam called from the hospital. Emma is eating well, but still losing weight. The tests run so far don’t show anything obviously wrong. One doctor thought the two working veins from the lungs to the heart look too small, so they’re going to look further into that on Monday. An x-ray also [...]
October 22, 2005:
12:30 pm – Every time the nurses try to wean Emma off the oxygen, her oxygen blood levels drop below what they like so they are gong to send her down by ambulance so she can stay on that. Hopefully Miriam can go with them in the ambulance – right now they’re just trying to [...]
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