Archive for November, 2005
November 29, 2005:
7:00 pm – Email from Miriam: I finally got to talk to the resident doctor today. She explained what the plan is and also explained better what happened over the weekend. I had never got the full story. Basically over the weekend when they tried to wean Emma off the ventilator her CO2 levels went [...]
November 28, 2005:
2:30 pm – We had a great Thanksgiving weekend with family. And it was great having Elise, Miriam, and I all in the same building for a few days as we stayed in an apartment Wednesday through Sunday. Emma is still waiting on her heart cath – looks like it will be tomorrow. Due to [...]
November 22, 2005:
8:30 pm – I talked to Miriam this afternoon. The geneticist and pulmonary specialist have both come by to look at Emma. The pulmonary speciist (lung doctor) had some theories that line up nicely with what we have experienced. Basically, it looks like her body’s normal response to a slight lowering of oxygen is extra [...]
Email from Miriam (Nov. 20, 2005)
As most of you have hopefully heard, we are still in Little Rock after being discharged yesterday (Saturday). Emma was doing pretty well, though I could tell she was having a little more trouble again- grunting while breathing on Saturday. She also started the day with a long episode of trying to throw up. That [...]
November 20, 2005:
6:15 pm – Miriam and Emma are still in Little Rock. Emma had a breathing fit last night as we loaded her into the car, so we brought her back into the hospital for observation over night. Then this morning she had a really bad episdode, similar to the one a week ago that brought [...]
November 18, 2005:
9:30 am – Doctor says Miriam and Emma should be ready to leave the hospital tomorrow morning (Saturday)! They’re wanting to send oxygen home just in case, but they were surprised to learn that our insurance doesn’t cover that, so we’ll see what happens. It’s been three weeks (they told us 1-2) on the Medicaid [...]
November 17, 2005:
9:30 pm – Emma is done with the procedure, and it went well. She is recovering nicely, and the results aren’t too bad, or very un-expected. Basically, the doctors were able to confirm a moderate amount of leakage around the patch, and that a couple of the veins are a bit too narrow. Seperately, each [...]
November 15, 2005:
4:30 pm – I talked to Miriam this afternoon. Looks like we may be home for Thanksgiving after all! No guarentees, but it’s sounding like they’ll do the catheterization on Thursday, and then send her home as soon as she recovers from that (few days?). She’ll have oxygen with her this time to prevent any [...]
November 14, 2005:
6:30 pm – The doctors have scheduled a heart catheterization for Thursday. They’re thinking that some of the veins and arteries may be too thin, and this will let them know for sure. If there’s a localized thin area, they’ll be doing some surgery. If it’s more than just a localized spot, then…well, we don’t [...]
November 12, 2005:
10:30 am – The doctor just came by and talked to Miriam. At first, the doctors thought that the Echocardiogram from yesterday was looking fine, and they continued looking for other reasons for these problems. However, after another series of virus tests, they’ve pretty much ruled out viruses, colds, and pnuemonia as the direct cause [...]
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