Archive for December, 2005
We’re home!
We’re home! I picked up Miriam and Emma Saturday morning and we arrived in Siloam Springs about 3:00. Emma is now relaxing at home with her oxygen machine.
December 16, 2005:
7:30 am – The last few appointments are being finished up today – I’m hoping to be able to pick Miriam and Emma up tomorrow! Unless something else comes up, we should be home this weekend. We do have another appointment next Thursday, and more into January (including another MRI), but hopefullly those will alll [...]
December 13, 2005:
7:15 pm – The doctor is now saying he wants to observe Emma for another three to four days, and then she can come home so long as everything is looking good. There’s one more lung test that they’re going to do, probably tomorrow. A hearing doctor did confirm today that Emma has virtually no [...]
December 12, 2005:
6:00 pm – The results of the chromosome test have come back negative. Originally the geneticist said that indicated only that she would need another test. But maybe she’s doing well enough that they’ll cancel that – we don’t know at this point. A new doctor is now wanting her to stay for more tests [...]
December 10, 2005:
5:30 pm – I just arrived back from the hospital where I saw Emma and dropped Miriam off to stay with her. Emma is looking great! She’s still very sleepy because they are gradually weaning her off all the sedations, but she looks much more comfortable and happy. She should have moved from PICU to [...]
December 9, 2005:
11:30 am – Emma is coming off the ventilators now! The hospital just called. Wow! We’ve been hoping for this for so long, it didn’t seem like it was ever going to happen! So, change of plans, we’ll be heading back down to Little Rock tomorrow morning. Emma will stay in PICU for at least [...]
December 8, 2005:
4:00 pm – Miriam called the hospital this afternoon. The nurse said that Emma is doing really well. They turned the ventilator “way down” and lowered another pressure number, and the oxygen levels in her blood stayed where they’re supposed to. So that’s good progress!
December 7, 2005:
7:00 pm – Just a note to let you know that Miriam and I have returned home for a few days to spend some time with Elise (who is THRILLED to home again!). Emma seems to be improving VERY slowly, so while she’s stable but mostly sleeping we thought we’d both come home for a [...]
Email from Miriam (12/16/05)
Yet another day of waiting has passed. Apparently the ear doctor did come yesterday. Oddly enough, I was there all day and didn’t see them, but they must have come while I was taking a nap. I saw one lady, so she might have been the ear doctor and I just didn’t realize. They said [...]
December 6, 2005:
10:30 pm – Emma is fine, but still on the ventilator. The doctors have upped some pressures and medicines to hopefully help her lungs strengthen a bit. Some of the numbers seem a bit better today. I’m going to try to talk with the doctors tomorrow about all of this. We’re still hoping that she’ll [...]
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